My husband and I are big fans – for many reasons – of a family who lives right down the street from us – the Wyckoff family. We are also American Ninja Warrior fans. So when we saw that the Wyckoff’s oldest child, Spencer, was picked to compete on this year’s show of American Ninja Warrior being taped in Atlanta, it became a no brainer – we were there.
What’s more, and this came as no surprise . . . the primary purpose for Spencer’s participation in ANW is to raise awareness of a muscular disease called Facioscapulohumera or FSHD. His sister, Carden, was diagnosed with FHSD when she was 8 years old. She will soon be 23 and continues to fight it with courage and grace each and every day.
Spencer received some great news today from ANW about their plans to help raise awareness of FSHD. You can read about American Ninja Warrior’s plans here.
You can also help raise awareness of FSHD by learning about it on the FSH Society website, and sharing what you’ve learned with your family and friends. Thank you.
#FSHDninja #cureFSH #FSHSociety